On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. So grateful for everything this month. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. The BBC is not responsible for the content of external sites. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. However, her illness forced her to leave the platform in 2017. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. At the time of birth, she had the life expectancy of only 5 years old. Find an Obituary . She grew up loving to perform and landed her first role inThe Music Manat 4 years old. Claires Place Foundation offers two kinds of support. Claire, who understood the importance of organ donation, was a donor herself. I had to be honest, she once explained. She wanted to help other affected families too. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. The family received immense support from friends, and community. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. On Monday afternoon, her mother received word that Claire had already made a difference. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). My parents are divorced. Read about our approach to external linking. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow She has a younger sister named Ellie Wineland. Living a life we can be proud of is something we can control. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. She had a popular YouTube channel, gave . [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. I don't spend any time thinking about the day that I'm cured, or the day that I'm healthier, and that's because I know that on a certain level, it doesn't matter. The years of telling myself I can do it on my own are over. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Died: Sunday, September 2, 2018 (Who else died on September 2?). The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. "I had to be honest," she once explained. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. pic.twitter.com/BsTEFmquR7. Then came the call that offered new life. Who was Ukrainian minister Denys Monastyrsky? Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. She knew that the call could come at any minute, and on August 26, it did. She had a younger sister named, Ellie. "Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughter's aura and her ability to lift up those around her.In 2017, Yeager recalled a conversation with Claire about death. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. I would like to acknowledge Claire Wineland who passed away last night. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Im just really overwhelmingly grateful for all of this. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. Who is Claire Wineland? Senior producer, Legacy.com. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. Read about our approach to external linking. I didn't expect to have a chance. Her organs were made available for transplant. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. We invite you to share condolences for Claire Wineland in our Guest Book. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Anna May Wong Cause of Death, Age of Death, and Other Facts! In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. It's a reality of living with cystic fibrosis she's come to accept. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare. The BBC is not responsible for the content of external sites. 2. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. She played hide-and-seek with nurses and left explosions of glitter in her wake. Im grateful for my own head and for all the weird things in it. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. She has a younger sister named Ellie. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Chelsi Smith Age, Death, Husband, Family, Biography & More, Uriah Shelton Height, Weight, Age, Girlfriend, Biography, Family, Facts, Net Worth & More, Mary Patrux Height, Age, Husband, Family, Biography & More, Grant Gustin Age, Wife, Girlfriend, Biography, Family & More, Wejdene Height, Age, Family, Biography & More, Lee Min-ho Height, Age, Girlfriend, Wife, Family, Biography & More, Alison Brie Height, Age, Boyfriends, Husband, Family, Biography & More, Colt Prattes Age, Wife, Biography, Facts & More, Wendy Pepper Age, Husband, Family, Biography & More, Chris Zylka Age, Height, Girlfriend, Family, Biography & More, Santa Monica College, Santa Monica, California, College Dropout (left her college due to illness), She had lived in Redondo Beach, California, The Princess Bride, Harry Potter, The Mortal Instruments, Beautiful Creatures, Warm Bodies. She passed away peacefully, with her parents by her side. A self-described goofball, she usually engaged people with humor and optimism. View this post on Instagram Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. Obituaries Section. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. Before signing off, Claire implored viewers to do one thing. The Plain Dealer Homepage. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. She performed with Philips Breathless Choir, as a solo singer. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She was of the mind that she would leave this world with the body she came in with. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! I'm not an innocent and I'm not a child," she wrote in March. Im just really overwhelmingly grateful for all of this. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Shed worked hard to get there, was focused on her self-care and getting stronger. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. Wineland was moved by the communitys support when she was in coma. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. It hurts everything inside of me to make this video, she said into the camera. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. The medical team that tended to her became family. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. She had a popular YouTube channel, gave What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Youll be missed deeply. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. Claires parents learned to trust their independent and strong-willed daughter. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. @larissaperoux We some cheese balls just cheesing it up. Death is Inevitable. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. She passed away peacefully, with her parents by her side. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. She played hide-and-seek with nurses and left explosions of glitter in her wake. Its a GO!! She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. Wineland stated she did not have the energy or the money to take the case to court. Jace Prescott died at age 31, too young. "It hurts everything inside of me to make this video," she said into the camera. Claires Place Foundation is planning to continue extending support to patients. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. This time, she was raw and allowed herself to cry. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. Like to acknowledge Claire Wineland ( @ claire.wineland ) on Apr 2, 2018 at 10:37pm PDT consultant on film! Life in the hospital support from friends, and community actor Justin Baldoni Instagram, speaking about... To make this video, she had the life expectancy of only 5 years old post by! Sanjay Gupta every Tuesday from the CNN Health team on society 's of! 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